Leo Lagana, who suffered from primordial dwarfism, died at the age of 22. Lagana was loved all over the world as a result of his social media presence.
Lagana, a Wollongong resident, had been battling aneurysms for much of his life, a complicating factor of primordial dwarfism type II.
On Monday morning, his grief-stricken mother, Pauline Lagana, confirmed his death. “I’m so sorry I couldn’t do more for you,” she said on Facebook. Pauline added, “RIP my angel. Mum and Dad have such a void now. Forever broken,” she wrote.
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Who was Leo Lagana?
Lagana was born in 2001 with primordial dwarfism type II, which causes skeletal abnormalities to Paulina Lagana. He stood 93cm tall and weighed 20kg. Due to his condition, the Wollongong local passed away on January 24, 2023.
He had been in and out of the hospital for the previous month as his health declined, and he passed away on a Monday morning. Leo’s mother spent many hours before his passing working to spread awareness of his condition after he was labelled a “freak” and tormented on social media.
His mother previously stated that her son “walks down the street like he’s 10ft tall” because of his “loud, gregarious, cheeky, and very social” personality.
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Doctors have been baffled by the schoolboy’s birth weight of 1.6 kilogrammes and length of 28 centimetres. He had aneurysms (excessive localised swelling of the artery wall) and Moyamoya, a rare form of brain disease.
Lagana’s condition is incredibly rare (one in 130 million) and affects only 200 people worldwide. His bright personality inspired thousands, both through his online personality and those he met in the Illawarra area.
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Leo fought his disease with humor and playfulness, amassing up to 14,000 followers on his Facebook page, where he shared his daily life.
