Ady Barkan, a dedicated progressive activist and attorney who harnessed his battle with amyotrophic lateral sclerosis (ALS) to champion the cause of safeguarding and enhancing public healthcare coverage, passed away on Wednesday. He was 39 years old.
The news of Barkan’s passing was shared by his wife, Rachael Scarborough King, via the social media platform X.
Who was Ady Barkan?
Ady Barkan, a prominent activist, and attorney, had been at the forefront of the fight for healthcare and social justice in the United States. Born on December 22, 1983, in Ladera Ranch, California, Barkan’s life took a dramatic turn when he was diagnosed with amyotrophic lateral sclerosis (ALS) in 2016 at the age of 32. ALS, also known as Lou Gehrig’s disease, is a progressive neurodegenerative disorder that affects nerve cells in the brain and spinal cord.
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Barkan’s diagnosis compelled him to dedicate his life to advocating for healthcare reform and social justice. He became widely recognized for his tireless efforts to ensure that all Americans have access to affordable healthcare. Barkan’s advocacy work included testifying before Congress and actively participating in grassroots movements, advocating for universal healthcare and a more equitable society.
One of the most notable moments in Barkan’s activism was his encounter with then-Senator Jeff Flake on an airplane. In a heartfelt conversation, Barkan, who is unable to speak due to his condition, used eye-tracking technology to convey his message. He passionately urged Senator Flake to vote against tax cuts that would have negatively impacted healthcare. This encounter gained significant media attention and further elevated Barkan’s status as a vocal advocate.
Ady Barkan founded the Be a Hero campaign, which aimed to influence lawmakers to support healthcare policies that benefit all Americans. His efforts were instrumental in mobilizing grassroots movements and raising awareness about the importance of healthcare reform. He also co-authored the book “Eyes to the Wind,” which chronicles his journey, struggles, and his unwavering commitment to the fight for justice.
Barkan’s advocacy extended beyond healthcare reform, as he passionately supported various social justice causes, including racial equality, climate change, and the rights of marginalized communities. His determination and unwavering spirit in the face of ALS inspired countless individuals to join the fight for a more just and equitable society.
